Okay, so I'm in a bit of cautiously silly/cheerful mood at the moment...

the test never end either  my last appointment I was told my condition is just stupererodigenous

Good news Beeps.....I'm glad to hear it's not what they misdiagnosed you with. I don't put much faith in doctors, even though I work in the medical field.     

Mesh
Good news Beeps.....I'm glad to hear it's not what they misdiagnosed you with. I don't put much faith in doctors, even though I work in the medical field.     

Apparently if I have the NEW thing they think I have then apparently there have only been 60 reported/diagnosable cases of it EVER... like in the WORLD! I can't really blame them TOO much for not getting that one right the first go 'round (lol) but I know what you mean.
 
Where's Hugh Laurie when you need him?!
 
The morbidity factor of the previous insinuations though were a total mindtwister so I'm just letting it all sink in a bit.
 
Alright... I'm being a bit of an overshare bear. Just wanted to warn people I'm feeling silly.
 
;-)

Mesh
This is the right place to be silly.........wait, there's one more place..............

In my pantaloons?

Beepster

Mesh
This is the right place to be silly.........wait, there's one more place..............

In my pantaloons?

Hopefully, the chicks don't go hahaha silly Beeps.... 

BobF
Great news!!!
 
Unless what you have makes your heart cause other stuff to explode

Well therein lies the rub. If it turns out to be this NEW thing then there is the same potential for things to explode... but not really REALLY important things like the other thing does. So it would be bad... but not like "need to be on an operating table within twenty minutes" bad.
 
If it turns out to be the VERY specific version of THAT thing then it sounds like it's limited to mostly skeletal and less critical connective tissue... which explains the chronic pain.
 
Pain... well it sucks but I'm used to it and set up to deal with it.
 
The randomly dying thing... well I guess I was prepared for that too after all this time but seriously I was not cool with it... yet.
 
I cannot leave a good looking corpse.
 
;-)

good news.

Beepster
 
Pain... well it sucks but I'm used to it and set up to deal with it.
 
The randomly dying thing... well I guess I was prepared for that too after all this time but seriously I was not cool with it... yet.
 

You guys that deal with chronic pain are really special people, amazing how you can do it and still make music!
 
Being cool with dying, well I've got that one down, on a bright side it does makes for some great lyrics!

quotefixerer
 
 

Beepster
 
Apparently if I have the NEW thing they think I have then apparently there have only been 60 reported/diagnosable cases of it EVER... like in the WORLD! I can't really blame them TOO much for not getting that one right the first go 'round (lol) but I know what you mean.
 
Where's Hugh Laurie when you need him?!
 
The morbidity factor of the previous insinuations though were a total mindtwister so I'm just letting it all sink in a bit.
 
Alright... I'm being a bit of an overshare bear. Just wanted to warn people I'm feeling silly.
 
;-)

With something that rare, it's too bad you can't sell it on eBay.

 
Ya, and then knockoffs start appearing for half the price.

Good news on the heart, and hey, if you really do have something soopa-rare then maybe you can earn some $$$'s allowing yourself to be prodded by rooms of chin-scratching boffins with clipboards? 
 
My uncle had his first heart attack in his 30's and eventually died of one in his 50's. My granddad died of a heart attack too. So I've always been worried about having inherited the potential for heart problems. Having said that, my dad is in his 70's and has never had heart issues, and mine seems to tick along quite happily at around 55bpm. 

Thanks all for the kind werdz. I should have replied sooner but I think this has been hitting me a little harder than I expected... in a GOOD way.
 
Still lots of questions and things to worry about but somehow having that ever looming/impending threat of death and/or radical surgery lifted... well it changes one's outlook juuust a tad. Things are different now.
 
Anyhoo... looking forward to hopefully experiencing another Beepso rennaissance and chalking a lot of this up to "builds character". lulzity...
 
@RobbyK... Squeeze as much enjoyment as you can out as long as you can while trying to stay comfortable and definitely... if music is what you love then just have at 'er. It's the only thing that's really been getting me by and I'm a firm believer that creating, playing or even just listening to music has curative properties.
 
I've always thought about maybe getting into music therapy. Nothing fancy. Just teaching/playing music with people who could benefit from the distraction.
 
Keep pluggin' on.
 
Cheers.

bapu
Beeps is back in the saddle again.
 
Yay!

Beeps and his "sidekick" .....band on the run!!